How the SOAR Act Would Improve Access for Rural Communities

By Kathleen Haduck When I think back to my diagnosis of Alpha-1 Antitrypsin Deficiency (Alpha-1) in 1995, I’m struck by how much has changed since then. This rare genetic condition affects each patient differently – for my sister, it caused liver cirrhosis, and for me it caused lung damage. When my sister urged me to…

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